New Do 2008

The New Do
Posted Dec 26, 2008 6:27pm

Christmas Day proved to be a longer and harder day than I expected. Growing up we had our traditions as all families, but our traditions were, well, somewhat untraditional being from a family where the kids wanted to see Mom, Dad AND Santa as well as the hodge-podge of other extended family. I didn't really think it would be that big of a deal to be in the hospital, because I ended up being with Mom and Cheston the better part of the day. But, I had some alone time and I have to say I really missed sitting in a circle on the floor opening gifts one by one, fighting with Trentt over the last one opened. I missed being able to go to Dad and Vicky's and baking Christmas cookies, as well as spending time with them. But what I REALLY missed was the fact that all of us couldn't be together on such a special day. Pop is down in York with Dad, since Nana is in the assisted living facility where Vicky works.This is the first Christmas in my 26 years that I have not seen them on Christmas morning. It saddens me to think that I may not have that opportunity again. But, with me sick and Nana sick people in our family are spread pretty thin these days. On a lighter note, Trentt and Amy and the boys came in earlier this week and we did Christmas here at the hospital with them. I swear those are the two cutest boys on God's Great Green Earth. They have the ability to lighten my heart and my mind like no other. I hope they had a wonderful morning with Santa.

I got up and had the wonderful gift of my own personal hair dresser at the hospital on Christmas morning. Arthur and Tamera were generous enough to came and spread a sheet in the hall and get to snippin'. They really did not have to come do this on Christmas, but is is so heart warming to know there are peple out there caring enough to take time out on such a special day to come make my day a little brighter. I got a cute new do, an amazingly low mantinence hair cut, and I love it.

I had my third round of apheresis today. (I hope I am spelling that right.) It was nice because of the holiday the cancer center was closed, so they came to my room to do the treatment. My blood pressure dropped quicker today than the previous two times. Within the first ten minutes my BP went down to 97/61, so she just adjusted the fluid exchanage so it wasn't as fast. Apheresis is a very interesting feeling. It tires me out, but being able to visualize all of the "BAD" antibodies coming out of me seems to help my mental status. Apparently the process of apheresis slows down my PT/INR time, so it is taking wwwwaaaayyy too long to get to the number I need to be at to go home. It is very tricky, especially in me, to get the perfect blood consistancy. It can't be to thick because I have the clotting disoreder, but if it is too thin I run the risk of another organ hemmorage. And I really don't want to end up in ICU again. This is the first time I have been in the hospital in a year and a half where I actually feel like being awake, so needless to say I am going stir crazy. I have cabin fever and I am driving myself and the nurses crazy. Plus I have a headache that will not go away for anything.

Suzanne, you may regret setting this page up. If I am bored I will be on it.:)

I do want to thank all of you that have left messages, encouragement and prayers for me. I do believe in the power of prayer and I am gracious for them all. It amazes me on a daily basis that there are so many people out there that do not know me and are willing to pray for me and offer such support to me and my family. Until tomorrow...Kinsley