Haircut, Birthday Party, Treatment and Deflating 2008

Haircut, Birthday Party, Treatment and Deflating
Posted Mar 25, 2009 4:17pm

Once again, it has been awhile since I have updated the page. Since the last time I wrote I got my results back on my MRI, and things are looking better! The doctors said they consider this a "small victory" (I consider it a pretty significant one myself). This means my brain lesions are looking better. My vision is back to normal, I can swallow normally, and my balance is better. I am pretty clumsy, so better for me. I was very worried about the prospect of my vision not coming back. That scared me a lot. The thought of not being able to drive, being dizzy all the time, and stumbling around was not very good one. Thank the Lord for that prayer being answered. As far as my back goes, the MRI didn't show any new fractures, and my verteabraplasty spot is healing well. That, too, is feeling much better. I can still tell when I do too much or sit in the same position too long it flares up, but nothing like before. Another prayer answered.

I went to the neurologist, and he confirmed that my brain looks better. He said by looking at the recent MRI and the older one that I would have my good and bad days. The lesion can still cause some blurry vision and headaches, which I have experienced a few times.

I went back to the rhuematologist also, and we decided on three more rounds of chemo, so I have two left. Each round gets increasingly worse. I am worn out, exhausted, have the cold sweats, and feel like I am going to puke for a little bit longer each round. I have been taking nausea meds and sleeping through the worst of it. They started me on a new medication that most people that have autoimmune diseases are on. It is supposed to help with inflammation, so hopefully my joints will feel better. They are deacreasing my prednisone WAHOO! I am feeling a little less bloated, and that makes me feel lots betting in its self.

I am still battling the Warfarin war. She can not figure out why I am having such a problem getting stable.

My nephrologist,(kidney doctor), is getting my in a Mayo Clinic, so we are waiting to gear back from them for an appointment. The doctor there is a specialist in vasculitis involving the kidneys, so hopefully he can confirm or rule out a diagnosis.

Medically, I think that is about it. Last weekend we had Trentt, Amy, E.C., Ryder, Mom, Debra, Dad, Vicky, DeeDee, Charlie and Pop over for a cookout to celebrate Ryder's birthday. We had a great time and it was so good to see everyone. It was very hard to see Pop over here without Nana. Please still keep them in your prayers! Being around Trentt, Amy and the boys makes me really miss living in Wilmington. I hate not being able to see them more often. I also miss the town of Wilmington. I felt very at home there, but I am in the right place for now. Other than that not much else has been going on with me. I don't really go out because I am afraid of getting sick and having to deal with that on top of everything else. I am trying to do a few art projects and I am reading a lot still. My mom took me to get my hair cut, and I really like having my hair short. It helps make it look thicker, and I like that since I have lost some. I hope everyone is doing well!

Love,
Kinsley